Chronic Fatigue Syndrome / ME

Local Providers for Chronic Fatigue Syndrome / ME

What Chronic Fatigue Syndrome (CFS/ME) is

Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a long-term condition that causes extreme tiredness that does not improve with rest.
It can affect energy, concentration, and physical functioning, making everyday activities and school attendance difficult.

Symptoms can fluctuate — some days may feel manageable, while others bring significant exhaustion.

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    Main signs and symptoms

    People with CFS/ME may experience:

    • overwhelming tiredness after minimal effort (post-exertional malaise)

       

    • muscle or joint pain

       

    • sleep problems or unrefreshing sleep

       

    • difficulty concentrating or remembering things (“brain fog”)

       

    • dizziness, nausea or sensitivity to light and noise

       

    • worsening of symptoms after physical or mental activity

    Check common symptoms of CFS/ME
    Learn how fatigue and recovery patterns differ from ordinary tiredness.

    Possible causes and triggers

    The exact cause is unknown, but it may be triggered by:

    • viral or bacterial infections

    • immune system problems

    • hormonal imbalances

    • physical or emotional stress

    • genetic factors

    CFS/ME can develop suddenly or gradually and affect anyone, including children.

    Learn about possible causes of CFS/ME
    Understand current research on infection, immunity and stress links.

    Getting assessed and diagnosed

    Diagnosis involves ruling out other conditions that cause fatigue.
    Assessment may include:

    • detailed medical history

    • physical examination and blood tests

    • review of activity patterns and symptom diary

    Diagnosis is typically made by a GP or specialist team familiar with chronic fatigue.

    Support in education

    Children and young people with CFS/ME may:

    • struggle to attend school regularly

       

    • need flexible learning and rest periods

       

    • require support with pacing and energy management

       

    Schools can help by:

    • providing part-time or home-based learning

       

    • adjusting timetables and workloads

       

    • using online lessons or recorded materials

       

    • coordinating with healthcare professionals

    If needs are significant, an EHCP or EOTAS package may be appropriate.

    Treatment and management

    There is no single cure, but a combination of approaches can help manage symptoms:

    • Energy management and pacing to avoid overexertion

    • Graded activity introduced slowly and carefully

    • Sleep management strategies

    • Pain relief or symptom-based medication

    Talking therapies (CBT or counselling) for coping and motivation

    Get support for CFS/ME

    Search for professionals who provide flexible, home-based education and support for children with chronic fatigue.