Muscular Dystrophy

Local Providers for Muscular Dystrophy

What muscular dystrophy is

Muscular dystrophy (MD) is a group of genetic conditions that cause progressive weakness and loss of muscle mass.

It affects movement and physical ability over time.
Although there is no cure, therapy, mobility support and medical care can help maintain independence and quality of life.

Related guidance

  • Cerebral Palsy
  • Wheelchair Users
  • Medical Technology Users
  • Severe Learning Difficulties (SLD)
  • SEN Wellbeing

    Signs and symptoms

    Children and adults with muscular dystrophy may:

    • tire easily or struggle with physical activity

    • have difficulty climbing stairs or standing up

    • walk on tiptoe or have an unusual gait

    • experience frequent falls or muscle cramps

    • show gradual loss of strength in arms or legs

    Check early signs of muscular dystrophy
    Learn what to look for if you’re concerned about muscle weakness or coordination.

    Types of muscular dystrophy

    There are several types, including:

    Duchenne Muscular Dystrophy (DMD)

    Usually diagnosed in early childhood; more common in boys; progresses over time.

    Becker Muscular Dystrophy (BMD)

    Similar to Duchenne but milder and slower to progress.

    Limb-Girdle, Facioscapulohumeral and Myotonic Dystrophy

    Affect specific muscle groups and vary in severity and age of onset.

    Explore types of muscular dystrophy
    Understand how each form affects movement and daily life.

    Getting assessed and diagnosed

    Diagnosis is made by a specialist team and may include:

    • physical examination and family history

    • blood tests for genetic markers (e.g. CK levels)

    • muscle biopsy or genetic testing

    • MRI or other imaging to assess muscle condition

    Ongoing monitoring is led by neurologists, physiotherapists and care coordinators.

    Support in education

    Children with MD may need:

    • adapted classrooms and accessible facilities

       

    • use of wheelchairs or mobility aids

       

    • rest breaks and reduced physical strain

       

    • personal care or medical support plans

       

    • therapy sessions within the school timetable

    Schools should prepare an EHCP or Individual Healthcare Plan (IHP) with clear communication between teachers, parents and healthcare teams.

    Therapies and management

    While muscular dystrophy cannot be reversed, interventions help maintain mobility and comfort:

    • Physiotherapy and stretching to prevent stiffness

    • Occupational therapy for independence in daily tasks

    • Respiratory and cardiac monitoring

    • Use of braces, standing frames or powered chairs

    • Emotional and mental health support for pupils and families

    Get support for muscular dystrophy

    Search for physiotherapists, occupational therapists and educational specialists experienced in supporting students with muscular dystrophy.